Sight loss research should be inclusive, action-oriented and accessible to people with eye conditions, according to a study into effective research methods funded by Thomas Pocklington Trust. Participants revealed they favoured opportunities to learn alongside researchers, and emphasised the importance of collaboration on language, rather than imposing labels.
- The most popular methods involved joint research, allowing researchers and the participants of a study to learn mutually.
- Community learning and studies that involved social opportunities and collective learning were also seen as supportive.
- Most participants would like to see people with research skills and live experience of sight loss manage research projects.
How can this research help?
The research offers a series of guidelines about what type of research processes are supportive of people with sight loss. By utilising these guidelines, future studies may be more effective and better received by participants.