Romilly is nine years old and lives with her mum Clare, dad Adrian and sister Astrid in London. Diagnosed as severely visually impaired from birth, Romilly initially got excellent support for her education.
When Romilly reached school age, the support she received dropped dramatically. It was down to her parents to fight for the support she needed.
Romilly now receives support from a specialist teaching assistant and a habilitation specialist, but this support was threatened recently when, due to budget cuts, the local authority looked to remove most of the funding Romilly relies on.
Jorja is ten years old and lives with her mum Laura in Chichester. Due to her vision impairment, her school years have been a source of constant struggle in accessing the information and support she needs.
Every day, Jorja faces challenges which affect her learning, with large print reading materials repeatedly forgotten about and equipment which would enable her to participate fully in class not provided. Laura has had to buy equipment for Jorja, including a kindle and laptop, with her own money, due to delays in the local authority providing them.
Laura says: “The stress and anxiety that these repeated issues cause is phenomenal. I don’t feel I get much support. It’s often just me winging it, trying different things to see what will work.”
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